Thursday, December 27, 2012

It's DONE... on with the fun!

  This past Friday night Clayton, Kate and I headed to Cook Children with a car full of hats and books and all of our overnight "fun" stuff.  Our car was decorated celebrating Clayton's last chemo and the school had just sent him off with lots of praises and thanksgiving school wide given over the announcements.  We were ready to get Chemo number 14 over with!
   We arrived at clinic and learned that too many kids had been admitted earlier in the day with neutrapenic fever, and there was not a room available for Clayton on the Oncology floor.  We immediately panicked, then called in our prayer warriors.  We drove to a nearby friend's house and had a great dinner while Clayton played with some of their children.  After a few hours, I decided that we better be a little proactive.  Kate and I had decided that we were NOT leaving Fort Worth without chemo. SO... we packed our stuff out of the car, walked up to the Oncology floor, begged saying that we drove from Waco, and camped out on the floor with all of our bags until a room became available.  Thankfully a sweet little girl finished her blood transfusion, her room was cleaned, and in went Clayton. He got a big room with a great view of the helicopter pad (a boys dream).  Unfortunately he didn't get to enjoy it long.  He fell asleep at 8:00 pm, just 30 minutes after we
 were given a room.  His chemo was started at 2:00am and it was done.  We were finished right there as he slept.  It was over.  The last poison had gone in his body... it was over! Praise the Lord!
    As usual, he woke up feeling pretty crummy, as you can probably tell from his pictures.  BUT, he insisted on delivering his hats and books to the children on the floor.   He wasn't about to leave until it was done.  So, Kate and I loaded a cart full of all of his goodies, dragged the IV pole along and went room to room
 delivering all of the sweet donations.
   The first room we visited was a new friend named Faith.  Wow.. were we EVER not prepared for the blessing we were about to receive.  We walked in and this gorgeous little girl with Osteosarcoma talked to Clayton and insisted that SHE pray for him before we left.  Wow.. here I was thinking I was going to go around sharing blessings and prayers, and here sits this darling 9 year old, in a hospital during Christmas, who was smiling, happy, and determined to pray for Clayton.  After she prayed the most gorgeous prayer for our boy celebrating his victory, we were able to pray for her.  BLESSING!!! WOW!!.  Please continue to pray for Faith.
   On we went to the other rooms.  We met so many sick kids.  Remember I said the floor was full.  This sweet little boy with the Baylor cap chose these items.  This picture was taken about an hour later when I walked by and he was wearing his BU hat and reading his new books.  LOVE IT!
   We also met Aliyah.  She's a GORGEOUS 16 year old also with Osteosarcoma.  I had the opportunity to get to know her mom a little and pray for Aliyah.  Kate enjoyed talking with her and
 comparing school stories, etc.  Then we met Logan. He is a precious little 2.5 year old who was having his SECOND chemo treatment, so he's a new diagnosis.  He also has Rhabdo and his parents are exactly where we were in March.  It's a hard hard place to be.  And then we met Kylie.  Kylie also has Rhabdo, but her's in not responding to chemo.  Please keep her family and her in your prayers.  Really all of these kids.  They are REAL.. they are hurting.. and families are going through things that we can only imagine as our worst nightmares.  Please cover them with prayers of grace, mercy and healing.
     We finished passing out the books and hats and Clayton got finished with his medicines and we headed for home.  We were welcomed by many friends and family in front of our new house.  How exciting to celebrate new beginnings all the way around.  So thankful for our prayer warriors and our community for loving us, reaching out to us, and holding us up.  SO so thankful.
     Our family went on to have a great Christmas Day.  Clayton is feeling great.  He's playing with neighbors and just being a kid.  Please pray that he stays healthy as he is still significantly  immune suppressed.  He'll have blood work tomorrow that I'm certain will show him dangerously low.  We'll pray for a strong come back and head out to Disney Jan 2-8 to celebrate with Clayton.  After we return, he'll have his end of treatment scans January 11th at Cooks.  We appreciate your prayers that he will remain Cancer free. Forever.  We are forever grateful for God for everything this year.  So so grateful.
   There are so many things this year that could have gone the other way.  So many things... but honestly, a path was made for Clayton that we can't explain.  While the treatment was so difficult, there was alot that could have happened that didnt.   It's a miracle, actually.  Clayton had minimal side effects and just continues to handle the entire circumstance like a champ.  While God is my ultimate hero,  Clayton is up pretty high in my book... right along with his siblings who handled life with grace and courage this past year... Not to mention my sweet husband that dealt with all of this, worked hard and carried us through.  May we continue to walk in His grace as we stand by Clayton to pray that he is cancer free FOREVER!

1 comment:

  1. I saw your family at Disney Hollywood Studios and I asked one of the young ladies what the shirts meant, and they told me about Clayton. I am so grateful to have seen your famnily, and today to read your story. I will continue to pray for your son's health, recovery, and your famiily.