The past few days we noticed Clayton's hair just falling out. No, it was not gradual, it literally started shedding like a puppy dog. Honestly, I was dreading this. I just have been so nervous about his little bald head. I guess thinking that once I saw it, it would just make this journey so real. AND.. of course, I was nervous about how HE would handle it. But, today.. it had to be done. The hair had to go.. so we loaded up and went to Great Clips. As the hairdresser started shaving his head, I saw that he was going to be completely bald. So, quickly I hollered at her ... " Let's leave a Mohawk!". She just smiled and left a little strip in the top, gelled it up, and he was in LOVE. Of course, I know the mohawk will also be short lived, but at least for today, it left a little boy smiling.. and several kids in the waiting room jealous as their moms rolled their eyes at me for being the "tacky" mom that would allow her son to look like that. All of them totally unaware of my motives. The looks continued as we ventured to Walmart to pick up a few things. There were several elderly people that were rolling their eyes and looking so disturbed by the hair. Just a reminder to " Judge Not..."I remind myself of this as I was also disturbed by their willingness to go out in public in slippers and pajama pants :) Just sayin... Just sayin.
Because I knew the hair was going, I asked sweet Heather to take a few family pics in the bluebonnets. I love bluebonnet pictures. So, we marked to beginning of our journey with some cute pictures in the bluebonnets on a gorgeous Spring night.
Today we had little chemo that we were able to have administered here in Waco at the Cooks Satellite Clinic at Hillcrest. What a blessing! Our friend Temi was able to do it, and we also met one of the Cooks doctors who happened to be in clinic today in Waco. How awesome! He is friends with the doctors from Texas Children's, and they all seem to be happy to work together to give Clayton the best care possible. The idea that they rise together and work to help us is humbling and precious. It's obvious they all truly love what they do. Clayton's blood work today shows good White Cell counts among other good things, and the doctor says we should expect Clayton to have a great week. He'll do his next overnight chemo in Ft. Worth at Cooks on Wednesday/Thursday of this next week. We are using Cooks instead of Tx Childrens this week for convenience. 1.5 hour drive is a blessing compared to 4 hrs.
I was thinking earlier today how time is flying. A month ago today I was in the waiting room at Texas Children's while my baby was in the MRI machine. It was probably the darkest day of my life. I was literally on my knees in front of all the waiting parents crying and begging God to give us a clean report.... a good word... a great prognosis. I was completely unaware of anyone else around me who was watching me.. just me and God..lots of tears.. and the floor. A month later, we're actually ok.. We're surviving. We're taking one day at a time, and it's okay. We have a long road, but we're on it. We're moving forward. We're laying it at the feet of Jesus, being Held and expecting great things. Our son is smiling most days, we've felt loved like never before by our friends, and we're confident that God is doing an amazing work in our little guy. The Lord is sustaining us.
AND... this little bald head is not as scary and frustrating as I expected it to be. " He's Bald... But He's Living"... quoted from a sweet Cajun mom in the Texas Children's Playroom. As Clayton's little shirt says below.. " Life Is Good"... Embrace it!