This next week starts a new phase in our journey with Clayton. I have scheduled his inpatient chemo at Cook Children's for Tuesday, May 1. During this visit, we will go see Dr. Nielsen, the radiation oncologist, and begin our treatment plan with her. We are scheduled to start his radiation therapy this week. All of the doctors conversed and have decided that traditional therapy is best for Clayton. They don't think that Proton therapy, which is the one done in Houston, is the best therapy for him. On the bright side, this allows us to be in Ft. Worth, which is much more convenient for us. So... with that said, we will be starting our 6 weeks of radiation treatments this week.
Tuesday Clayton will have what is called a simulation. He will be put to sleep and will be fitted for a "mask" that he will wear during radiation. The mask will help the doctors pinpoint the exact locations that the radiation will be given. During this experience, Clayton will have new scans performed. This should not scare me because I do believe the chemo is working and the tumor in his ear will be minimal, if not gone, but to be honest with you, It terrifies me. It's easy to sit here in my house assuming the chemo is working, but it's another story to find out for sure. The actual MRI should take place on Tuesday or Wednesday with results given to us within 24 hours.
I don't handle change well, and the coming six weeks are truly going to be hard for our family. The older three kids are finishing out school with projects, concerts, field trips, field days...., Chad is running a business, Kate has her dance recital, Cort is in the prime of his baseball season, and somehow we will be making daily trips back and forth to Ft. Worth. I'm so so grateful for the "cure" and the therapy, but I'm also a mom who feels like the next 6 weeks are really going to take a toll on our family. So, today, I'm a teary eyed, nervous wreck who is walking in fear. I'll just admit it. "I know that God has not given us the spirit of fear", so I guess we'll just have to pray for me in that because I AM afraid!
Please pray for our family. When your alarm goes off this week, please pray for the following:
1- Clayton to have excellent scans that prove his chemo is working.
2- This week would go smoothly for Clayton and me in Ft.Worth and my family here.
3- Big Chemo to not be hard on Clayton this round.
Please also just pray for our family in general. This is hard on relationships. Sometimes the first relationships to be harmed are ones within family. Please pray for our marriage to be stronger than ever through this and for our kids to be able to talk with us and let us guide them through this time. Satan would love nothing more than to take my son's miracle and transform it into something ugly. Just pray God's hand over our family. This coming week is going to be one of the hard ones... but... one step closer.