Today we made our way back to Texas Children's to sit down with Dr. Murali and go over what we do to fight this awful cancer. To recap.. it is localized to the ear, and Dr. Murali feels confident that with chemotherapy and radiation we can get rid of it. He has suggested a 42 week regimen of chemo and radiation therapy. It's very confusing, but the doctors promise us that we'll get in a groove and figure out our new normal.
Today we had a childlife specialist come and explain to Clayton exactly what cancer is. She explained the awful cells that we have to attack. She also explained to him what a port is and what it will do for him. He will be getting one tomorrow at 1:00 and then going immediately to be admitted in Texas Childrens for his first chemo treatment. What we understand is that every third week his treatment will be done over an overnight stay at the hospital and the other two in between will be done as an outpatient.. possibly at Cooks Children's in Dallas. We're considering this just for the convenience...if there is a convenience to being on Chemotherapy. I guess we just take this one day at a time, one breath at a time, and treatment at a time.
We understand that we'll be homeschooling now.. a new task for me, even though I do have a degree in Early childhood :) I knew I'd use this eventually. Unfortunately, he won't be able to be in crowds for a while. We'll just figure this out as we go along.
As far as how we are doing... well, let me just be real for a second. I, personally, am hacked. I'm very much wanting to pick up the stool sitting next to me and shatter the window with it. I want to kick a hole in the wall I'm looking at. I want to take a baseball bat and beat a pinata up like its paper shreds. I'm jealous of healthy children, I'm missing my kids, I'm frustrated with my circumstance like no one will ever imagine. It's interesting, but for some reason, I'm not mad at God. I'm still holding His hand and trying to hear Him with me. I'm trying to understand what this is all about for me and my son... and my family. I still say.. God promised me GOOD... that's what He does it promise GOOD. " I will bless the Lord at all times! His praise will continually be in my mouth" I just keep repeating this to myself.
Our prayer points:
1- for the port placement to go easily tomorrow
2- for our first chemo treatment to be go amazingly well.
3- for our kids at home.
4- for clayton's ear to heal where he had his first surgery.
5- For the chemo treatment to go straight where it needs to go.
We rejoice that clayton's bone marrow and spinal tap came out perfect. Thanksgiving!!
Please keep us in your hearts and prayers. We can't make it without your support. We love you all. We are so thankful for everyone praying for us and Clayton. Please keep it up 6:16.
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ReplyDeleteKes, I am an advocate at dish breaking when needed. Take a moment from the kids, go somewhere where no one can see you and break ones bought from St. Vincent de Paul's or soemthing that would be charitible. This is normal and definately a good thing that you are allowing yourself to feel these emotions. God is most definately holding your hand and embracing you with everything a Heavenly Father can embrace you with.
ReplyDeleteThank you so much for the updates.
You, Chad, and the kids remain in our hearts and prayers
Kesleigh, please send me the circumference of Clayton's head I have a friend that makes hats and I would really like to send him one. I can get in in LSU colors or even as sock monkey, which ever you think he would like best. You can email me at lynette1roberts@yahoo.com also send me the address of where to send it. I am praying for Clayton and your family and we serve a mighty God who is able to take care of us all. I also think dish breaking is good therapy! I know you know this! In His name, Lynette Roberts
ReplyDeleteWe are keeping Clayton and your entire family in our hearts and prayers.
ReplyDeleteLet me know if you need ANY homeschool items or anything like that. I'd love to help you in this way if possible!! Email me if you need anything!
ReplyDeletePraying for you as you journey down this new and winding road. Praying for Clayton to be healed wholely and completely.
ReplyDelete"For You are my hiding place; You protect me from trouble. You surround me with songs of victory." Psalms 32:7
So glad I got to meet you Sunday in person and hug your neck. Praying for Clayton, you, and your family constantly. GOD is always GOOD and HE will deliver! Please let me know how I can help. In HIM, Nicole Rodriguez
ReplyDeleteI didn't find you in church Sunday to introduce myself properly, but you and your husband have taught our daughter Callie in Sunday School. My husband Truell plays the french horn in the orchestra. We think you should give some thought to this very well-written blog helping others later in the form of a book. Good, honest, intimate work in a hard place - it is made to be shared.
ReplyDeleteWe've never met, but many of my good friends know and love you. I just wanted to tell you that we have many dear brothers and sisters in Christ who worship with West University Baptist/Crosspoint Churches. If you ever need anything, you can call the church offices and they can help you out. They are sister campuses - both close to the med center -both used to ministering to families who are visiting for treatment. If you do call, be sure to tell them that the Becks sent you their way :-)
ReplyDeleteJust caught up on your last three posts. Saying a prayer for all of you this morning.
ReplyDelete"The Lord will command His lovingkindness in the daytime, and in the night His song shall be with me (you)..." Psalm 42:8a
We were in Women of Highland together a few times. I want you to know you have "family" in Louisiana praying for you too. Eastwood Bapt church, Haughton, LA. Clayton will win! and our Lord Almighty will guide you all.
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