Tuesday, February 21, 2012
And the Treatment Begins
Today we made our way back to Texas Children's to sit down with Dr. Murali and go over what we do to fight this awful cancer. To recap.. it is localized to the ear, and Dr. Murali feels confident that with chemotherapy and radiation we can get rid of it. He has suggested a 42 week regimen of chemo and radiation therapy. It's very confusing, but the doctors promise us that we'll get in a groove and figure out our new normal.
Today we had a childlife specialist come and explain to Clayton exactly what cancer is. She explained the awful cells that we have to attack. She also explained to him what a port is and what it will do for him. He will be getting one tomorrow at 1:00 and then going immediately to be admitted in Texas Childrens for his first chemo treatment. What we understand is that every third week his treatment will be done over an overnight stay at the hospital and the other two in between will be done as an outpatient.. possibly at Cooks Children's in Dallas. We're considering this just for the convenience...if there is a convenience to being on Chemotherapy. I guess we just take this one day at a time, one breath at a time, and treatment at a time.
We understand that we'll be homeschooling now.. a new task for me, even though I do have a degree in Early childhood :) I knew I'd use this eventually. Unfortunately, he won't be able to be in crowds for a while. We'll just figure this out as we go along.
As far as how we are doing... well, let me just be real for a second. I, personally, am hacked. I'm very much wanting to pick up the stool sitting next to me and shatter the window with it. I want to kick a hole in the wall I'm looking at. I want to take a baseball bat and beat a pinata up like its paper shreds. I'm jealous of healthy children, I'm missing my kids, I'm frustrated with my circumstance like no one will ever imagine. It's interesting, but for some reason, I'm not mad at God. I'm still holding His hand and trying to hear Him with me. I'm trying to understand what this is all about for me and my son... and my family. I still say.. God promised me GOOD... that's what He does it promise GOOD. " I will bless the Lord at all times! His praise will continually be in my mouth" I just keep repeating this to myself.
Our prayer points:
1- for the port placement to go easily tomorrow
2- for our first chemo treatment to be go amazingly well.
3- for our kids at home.
4- for clayton's ear to heal where he had his first surgery.
5- For the chemo treatment to go straight where it needs to go.
We rejoice that clayton's bone marrow and spinal tap came out perfect. Thanksgiving!!
Please keep us in your hearts and prayers. We can't make it without your support. We love you all. We are so thankful for everyone praying for us and Clayton. Please keep it up 6:16.