Wednesday, February 22, 2012

The Port is in

So today my darling little super hero was very brave and had a port put in the left side of his chest. In case you don't understand what a port is, it's a central line in his chest that gets the chemo directly into the bloodstream. It was about an hour surgery and he did well. He woke up hurting and is still very sore and it's hard to move. We are promised that he'll not even know it's there after the soreness goes away. It keeps him from having to be poked every time he goes for chemo.

While he was having surgery, we met his oncologist, who is outstanding, by the way, and he talked with us about his official treatment plan and also about getting started. His first treatment does require an overnight stay. We have run into a complication because of the kidney problem we found while we scanned his body. Again, this issue, which I don't know the name of, is common in children and is usually never found. However, because we need chemotherapy, we need our kidneys to be working perfect in order to flush the drug out adequately. So, before we can get our first treatment, we'll be meeting with the urologist tomorrow and having another test done to see if Clayton will need surgery to repair his kidney before he can start treatment. Yes, this is scary for me and seems like another hiccup. However, it will save his kidney from damage, so of course, that's important too.

So, we could be here in a room at Tx Childrens longer than just these 2 days. Our prayer would be that they find that his kidney is ok and we start treatment. Also, that Clayton would sleep well and not be in pain.

Through this whole ordeal so far, my big boy has cried ONCE... ONCE friends. He cried when the nurse removed the tape that was plastered all over him from the bone marrow test. He didn't cry any other time. His siblings won't believe that since at home you can look at him cross and he cries. The Holy Spirit is holding him and protecting him. I know he is. I can see it all over the calmness on his face. Now, if we could just pray that the Holy Spirit will place the same calmness on my face and that the spirit of fear would not consume me.

Pray points:
1- Kidney test to go quickly and smoothly.. I have no clue what the test entails.
2- Chemo to be done sooner than later.
3- A good nights sleep for Clayton with his new port.
4- Please remember all the children here, as well as Clayton. There are hearts breaking all around me with parents for their kids. We are surrounded by it. Pray for them too.

We love you all and could not be doing this without your support and love.


  1. Kes, you are my new hero. Thank you for your honesty. I was always a fan of your blogging before this blog...but now, even more.

    You are not alone in this. We're all in the battle with you. Consider us the
    "Clayton Prayer Platoon 616".
    Let's get some camo shirts made and kick this cancer's booty!

  2. Kesleigh, We are friends from CCT and we are so thankful your family shared Clayton's illness with us so we could pray too! Isaiah 40 talks about the greatness of God. I wanted to encourage you specifically with verse 11. It tells us of God that "He will tend his flock like a shepherd; he will gather the lambs in his arms; he will carry them in his bosom, and will gently lead the mother sheep with their young". It's not just Clayton, his promise is for the mamma too! Keep trusting Him one moment at a time!

  3. Kesleigh,
    Thanks for the updates. We huddle around the computer late at night to see what's happening in Clayton's world. Lamentations 3:22-23 "Through the Lord’s mercies we are not consumed,
    Because His compassions fail not. They are new every morning;
    Great is Your faithfulness.

  4. Kesleigh,
    We continue to pray for sweet Clayton and your entire family. Thank you for being an inspiration and sharing the emotions that you are feeling. If there is anything at all that we can do please do not hesitate to let us know. Always remember you are never alone.

    Tonya and Hannah Neal

  5. We have been praying for Clayton and your family since the day we learned of his condition. You are an inspiration for many others that are going through similar circumstances. Keeping your eyes on Jesus is the best way to be encouraged. In Him you can have comfort and peace and encouragement.
    2 Corinthians 1:3-5 says:
    Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God. For just as we share abundantly in the sufferings of Christ, so also our comfort abounds through Christ.
    May God give you the strength, peace, clarity and wisdom through this journey. We will continue praying for Clayton, for complete healing and for your entire family. God is good!!!
    Virginia and Lupe Fuentes

  6. Kesleigh,
    I am praying for you and your family. I LOVE what you said about the Holy Spirit holding & protecting him and how you can see it all over his face. That is so amazing and so awesome. I will be praying for all of you.

  7. Sorry to hear about your sweet son. We share a mutual friend in Waco, but more than that I have traveled down the same road that you are on right now. Our little guy (now almost 4), is a cancer survivor. He underwent chemo & radiation, and is now healthy beam of sunshine!
    The first month of all of this is so scary, but soon your family will fall into a new routine and things will seem less stressful and overwhelming.
    My prayer for you is to feel the peace of Christ that surpasses all understanding. Looking back to the time that our son was in treatment, I prayed not so much for his healing, but for God to sustain me with His grace to make it through each day.