So today my darling little super hero was very brave and had a port put in the left side of his chest. In case you don't understand what a port is, it's a central line in his chest that gets the chemo directly into the bloodstream. It was about an hour surgery and he did well. He woke up hurting and is still very sore and it's hard to move. We are promised that he'll not even know it's there after the soreness goes away. It keeps him from having to be poked every time he goes for chemo.
While he was having surgery, we met his oncologist, who is outstanding, by the way, and he talked with us about his official treatment plan and also about getting started. His first treatment does require an overnight stay. We have run into a complication because of the kidney problem we found while we scanned his body. Again, this issue, which I don't know the name of, is common in children and is usually never found. However, because we need chemotherapy, we need our kidneys to be working perfect in order to flush the drug out adequately. So, before we can get our first treatment, we'll be meeting with the urologist tomorrow and having another test done to see if Clayton will need surgery to repair his kidney before he can start treatment. Yes, this is scary for me and seems like another hiccup. However, it will save his kidney from damage, so of course, that's important too.
So, we could be here in a room at Tx Childrens longer than just these 2 days. Our prayer would be that they find that his kidney is ok and we start treatment. Also, that Clayton would sleep well and not be in pain.
Through this whole ordeal so far, my big boy has cried ONCE... ONCE friends. He cried when the nurse removed the tape that was plastered all over him from the bone marrow test. He didn't cry any other time. His siblings won't believe that since at home you can look at him cross and he cries. The Holy Spirit is holding him and protecting him. I know he is. I can see it all over the calmness on his face. Now, if we could just pray that the Holy Spirit will place the same calmness on my face and that the spirit of fear would not consume me.
1- Kidney test to go quickly and smoothly.. I have no clue what the test entails.
2- Chemo to be done sooner than later.
3- A good nights sleep for Clayton with his new port.
4- Please remember all the children here, as well as Clayton. There are hearts breaking all around me with parents for their kids. We are surrounded by it. Pray for them too.
We love you all and could not be doing this without your support and love.