Wednesday, February 29, 2012
First Treatment Done
Well it's been some long boring days waiting here at Tx Children's, but worth it to see our boy healing so well from surgery and getting his first treatment. Who would have thought that watching your child get chemo could be both heartbreaking and joyous all in one breath?
We were told yesterday that the Pediatric Urologists would take the tube out of Clayton's side from his kidney surgery. Once the tube was removed, we'd start the process for the chemo. We waited.. the clock ticked.. we waited... Still waited until about 8:00 tonight. Apparently it takes 11 hrs for 2 attending physicians to agree on the protocol, 2 pharmacists to check the drugs, 2 nurses to double check it, blood work run and 3 samples of urine to make sure there's not a trace of blood in it EVEN after kidney repair surgery. WOW!! So, now, 2.5 weeks after diagnosis, 6 scans later, two surgeries... One major, 5 events requiring anethesia, and many hours of Candyland games, Old Maid, Sorry and lots of joke telling... CLAYTON now has started CHEMO treatments to BEAT Rhabdomyosarcoma.
He slept through it. Believe it or not, he slept through it. He woke up toward the end and was playing games, had a little bit of nausea, but not enough to cry. So glad that it wasn't worse on him. Now he's just got a bit of the hiccups!
Today we were bombared with "here's what do ifs"...Here's what NOT to do.. Here's where to go... WOW... will I EVER remember all of this? Our doctor met with us today and reminded us that while Clayton will have to miss school, sports events, camps, etc.. it's just a small window of time compared to a long healthy life. He was VERY encouraging and feels confident that Clayton, along with all of his prayer warriors, will beat this. So, with that, I am now a full time Homeschool, Cancer Expert..in training, scared of every little hiccup Mom. Y"all stand behind me and pray me through it.
We'll be able to leave here tomorrow night and see our other kids. We're soo excited. I haven't seen Cort in 10 days. LONGEST TIME EVER. Can't wait.
I still say God is Good.. even when it doesnt seem fair and even when the timeline isn't to my liking. I still know God is Good and Wants good for me and my son.